Page 1 - Patient Advocacy
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Urological Health

                                 Genitourinary cancers:

                                 Bladder • Kidney • Prostate • Testicular







            eceiving a diagnosis of cancer is intimidating                        Contact information:
        Rand overwhelming to many patients and their                            Phone: 1-866-674-8889
        families. Patient advocacy groups are an important                  info@bladdercancercanada.org
        resource for helping patients and their families                    www.bladdercancercanada.org
        deal with their diagnosis and assist them in making
        educated decisions. These organizations often
        involve patients and their family members who have
        personal experience with specific cancers and are                        Kidney Cancer
        able to provide support, information and personal
        experiences. Many patients and families find this
        type of support to be an invaluable resource. Many
        of these groups also have the support of numerous
        medical experts and professionals in the respective
        area that serve as guides to help ensure patients are
        receiving appropriate medical information.  Given the
        abundance of information that is so easily available
        this is another of the major benefits of these groups.
        The Canadian Urological Association is proud to be        Kidney Cancer Canada (KCC) is a patient-led support
        associated with the following patient advocacy            organization established in 2006 to improve the quality
        groups that provide invaluable information and            of life for patients and their families living with kidney
        support to patients and their families with bladder,      cancer. The organization helps patients, caregivers
        kidney, prostate, or testes cancer.                       and family members navigate through the information
                                                                  they need to know about kidney cancer and its
                                                                  treatment.
                       Bladder Cancer                             KCC organizes patient information meetings across
                                                                  the country that can be attended free of charge or
                                                                  can be joined by live webcast. Resources include
                                                                  an on-line discussion forum where patients and
                                                                  their families can network and learn from others
                                                                  affected by kidney cancer. Trained KCC peer support
                                                                  volunteers can offer understanding and practical help
                                                                  to patients who are newly diagnosed or dealing with
                                                                  side effects from treatment.
        You have been diagnosed with Bladder Cancer,
        What does that mean? What happens next?                   KCC has been extremely active in research into
                                                                  kidney cancer and has supported scholarships,
        Bladder Cancer Canada (BCC) is an organization            research projects and helped to support the Kidney
        comprised of bladder cancer patients, survivors           Cancer Research Network of Canada (KCRNC) in
        and caregivers. They provide emotional support            collaboration with the Canadian Institutes for Health
        and educational facts from a patient’s perspective        Research (CIHR) and the Kidney Foundation of
        because they’ve been there. From treatment options        Canada.
        to explanations of what may be ahead, they will
        ensure that you won’t face it alone. Their phone and                      Contact information:
        online volunteers offer support, encouragement,                         Phone: 1-866-598-7166
        compassion and understanding when you need it                        info@kidneycancercanada.ca
        most. Their medical advisory board is composed of                    www.kidneycancercanada.ca
        urologists, oncologists and nurses that ensure the                       www.cancerdurein.ca
        medical information available is the most up to date
        and relevant data for patients and their families. This
        information is available online through the web site
        and through their volunteers. BCC also is actively                                   Continued on next page
        involved in promoting awareness of bladder cancer
        and guiding further research into this disease.
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