Page 1 - Patient Advocacy
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Urological Health
Genitourinary cancers:
Bladder • Kidney • Prostate • Testicular
eceiving a diagnosis of cancer is intimidating Contact information:
Rand overwhelming to many patients and their Phone: 1-866-674-8889
families. Patient advocacy groups are an important info@bladdercancercanada.org
resource for helping patients and their families www.bladdercancercanada.org
deal with their diagnosis and assist them in making
educated decisions. These organizations often
involve patients and their family members who have
personal experience with specific cancers and are Kidney Cancer
able to provide support, information and personal
experiences. Many patients and families find this
type of support to be an invaluable resource. Many
of these groups also have the support of numerous
medical experts and professionals in the respective
area that serve as guides to help ensure patients are
receiving appropriate medical information. Given the
abundance of information that is so easily available
this is another of the major benefits of these groups.
The Canadian Urological Association is proud to be Kidney Cancer Canada (KCC) is a patient-led support
associated with the following patient advocacy organization established in 2006 to improve the quality
groups that provide invaluable information and of life for patients and their families living with kidney
support to patients and their families with bladder, cancer. The organization helps patients, caregivers
kidney, prostate, or testes cancer. and family members navigate through the information
they need to know about kidney cancer and its
treatment.
Bladder Cancer KCC organizes patient information meetings across
the country that can be attended free of charge or
can be joined by live webcast. Resources include
an on-line discussion forum where patients and
their families can network and learn from others
affected by kidney cancer. Trained KCC peer support
volunteers can offer understanding and practical help
to patients who are newly diagnosed or dealing with
side effects from treatment.
You have been diagnosed with Bladder Cancer,
What does that mean? What happens next? KCC has been extremely active in research into
kidney cancer and has supported scholarships,
Bladder Cancer Canada (BCC) is an organization research projects and helped to support the Kidney
comprised of bladder cancer patients, survivors Cancer Research Network of Canada (KCRNC) in
and caregivers. They provide emotional support collaboration with the Canadian Institutes for Health
and educational facts from a patient’s perspective Research (CIHR) and the Kidney Foundation of
because they’ve been there. From treatment options Canada.
to explanations of what may be ahead, they will
ensure that you won’t face it alone. Their phone and Contact information:
online volunteers offer support, encouragement, Phone: 1-866-598-7166
compassion and understanding when you need it info@kidneycancercanada.ca
most. Their medical advisory board is composed of www.kidneycancercanada.ca
urologists, oncologists and nurses that ensure the www.cancerdurein.ca
medical information available is the most up to date
and relevant data for patients and their families. This
information is available online through the web site
and through their volunteers. BCC also is actively Continued on next page
involved in promoting awareness of bladder cancer
and guiding further research into this disease.